Click on support groups and chose the flag you prefer. ; November 5th 2020 - Research participants required: The role of exercise in ADHD self-management Liverpool Adult ADHD (Ladders of Life) Support Group: Meets every Thursday. The facilitated discussion groups are an opportunity for our members to come together and share information, advice and personal experiences around an agreed topic, with the potential to tackle some of the core issues of living with ADHD. 3. The legal system. Unique adult ADHD support group:  welcoming people from Surrey and surrounding areas; Contact: Donna Hunter at info@adhdsurrey.org.uk, tel: 07542 787 090, or use the contact form on their website http://www.adhdsurrey.org.uk/contact-us.html, 1. 43 working days have now passed since you received my FOI Request. ADHD Alliance Ayrshire Support Group: holds monthly meetings for parents /carers who’s child/young person has a diagnosis of ADHD. A woman was worried about having ADHD and sought an assessment. UKAP recognises ADHD as a complex but treatable condition, which can have a profound impact on individuals, families and society. D) Divert. Returning to my story: I revisited the Twitter row, partly because I was angry and looking for a fight and partly because I couldn’t believe that professionals still believed this kind of stuff in 2018. The busybody complained and the practitioner was able to come back with not only a bunch of the usual excuses (someone’s on holiday etc etc) but also an absolute blinder. I’ve got all the symptoms” they whine, as if they know anything about themselves, their minds or medicine. A happy productive member of society? In fact the people I met were kind, caring and open-minded, and some even had a wicked sense of humour and mischief. If any have mood swings or anger management problems, and they show them on front of you (or even a member of staff), you can bung them out on the spot for being abusive, and anyway you can put down “difficult patient” in their file’s private bit.You may even be able to get them banned from almost all the primary medical services in the whole area. And here is the British Psychological Society promoting the one year anniversary of the launch of the PTMF: Seems pretty clear that the PTMF has been published under the aegis of The British Psychological Society thus endorsing and legitimising the authors’ lack of knowledge about neurodevelopmental disorders as well as their disrespectful & discriminatory attitude towards people with ADHD. 6. We’re surviving and that’s all! Remind your ADHDolt that you are very important and your time is precious, but they aren’t and their time isn’t. Additionally, the authors quoted the “Mental Health and Wellbeing in England: Adult Psychiatric Morbidity Survey 2014” (published last year) which revealed that every week 1 in 6 adults experienced a “common mental health problem, such as anxiety or depression. North America. Some of us can even choose between seeing a consultant privately for follow-ups or waiting months to see the same consultant on the NHS. And now we go back to where we left off in the first paragraph of this post: we were going to do some research. NORTHERN IRELAND Adult ADHD NI supports adults affected by ADHD in Northern Ireland, run support group meetings in various parts of Northern Ireland International Support Groups. Next, on page 5, under the heading ‘Document summary‘, I learnt the reason for the existence of the Framework as follows (please bear with me as I give you these somewhat tedious details, their relevance will be more evident later): In 2013, the Division of Clinical Psychology (DCP) of the British Psychological Society Here’s a tip – try to blame it all on Americans. Tilbury children’s centre, Sure Start Flagship Centre, London Road, Tilbury, Essex, RM18 8EY Contact: Christine Ellisdon on 01375 413 742, 1. 4. We’ve put a link to the full paper at the end of the following introduction: Transition to adult services is often a difficult time for young people living with a mental It matters because we understand too well that surviving is not thriving and that knowledge is painful! There are all sorts of excuses, sorry, I mean reasons. We can now concentrate as well as focus better. Get them on that. The group meets at The Welcome Centre, 43 Hamilton Street, Birkenhead CH415AA; Tel: 0151 647 9584. In other words, roughly 3% to 4% of all adults have ADHD. It has now been 10 working days since the CCG’s last deadline expired. Addressing the Balance runs the Central Scotland Adult ADHD Support Group. . Scottish ADHD Coalition. The CCG, in response, told us they needed more time to ‘finalise’ their response and they expected to release the information by 28th January. M9 ADHD Parent Support Group, North Manchester. (Let’s be honest, if they didn’t keep claiming they had anything wrong with them, they wouldn’t keep getting rejected!) The authors’ tone, conveyed through their choice of words and viewpoint, is arrogant and patronising and their negative and disapproving attitude towards ADHD is stigmatising and discriminatory. Oh, and any possible addiction or substance abuse even if you only have circumstantial evidence is a great excuse to get them off the meds. Autism & ADHD Suffolk: This is a not for profit company. The prevalence rate for children with ADHD is between 5 to 7%, of whom approximately 65% will continue to experience symptoms in adulthood. Southwark ADHD: Parent/Carer Support Group: Website Facebook https://www.facebook.com/profile.php?id=100009587374961, 3. It’s even been suggested, in one known circumstance, that the Guidelines be disregarded. In one list of possible but unlikely side effects is “. Maintaining awareness of such biases is important when trying to think through ethical challenges. New here. 3. The waiting list is an urgent priority. This work is licensed under the Creative Commons Attribution-ShareAlike 4.0 International License. We are bringing this to your attention as well as the attention of the trustees not only because Lucy Johnstone directed us to the BPS but also because the presence of the BPS Logo on the Framework lends credence and validity to statements which stigmatise people with ADHD. Providing support across Lincolnshire since 1996. Neurodiversity Arts Festival (art, cake & fun in Kingston), UKAAN Announces Publication of ‘Handbook of ADHD in Adults’. Send them to the wrong type of therapy – in particular to a therapist that knows little of ADHD. All Party Parliamentary Group for ADHD. In truth, not all of the ADHD services have enough funding to meet the NICE Guidelines. The aim of this survey was to provide an updated picture of the state of adult ADHD support groups in the UK; we hope this would in turn help individuals, families and professionals in accessing updated information on the AADD-UK website for better local signposting. are). It will meet legal duties, NHS Quality Board’s definition of quality (safe, effective, caring, responsive and person-centred), as well as NICE Guidelines & Standards. Still, at least the mere fact that we’re waiting allows us a bit more hope than those of us who’ve not been noticed. Happy ADHD Group: Southampton Area, contact Amanda 07504 096 540, 2. None has been forthcoming regarding our feedback about these two matters although a registered psychologist, supporter of the framework, did send us inappropriate tweets. Remind your ADHDolt that you are very important and your time is precious, but they aren’t and their time isn’t. Full marks to whoever thought that one up. Suite 39 – 42, Burlington House, 369 Wellingborough Road, Northampton, Northamptonshire NN1 4EU, Tel: 01604 239200, Email: admin@adhdmatters.co.uk, 2. Contact: email enquiries@adhdoxfordshire.co.uk; tel: 01865 731 378; website: http://www.adhdoxfordshire.co.uk/default.html, 1. There’s a group of us too who, after a competent diagnosis of ADHD, don’t need any further help, not even medication. I’m not going to give details, it’s not fair. 5. They also have a list of unaffiliated groups here. 7. Now a lot of these whiners say they sometimes have trouble remembering to take their medication, which on the face of it looks rather the opposite of addiction. 3 in 4 people at the lowest income level, 85% of unemployed people, 7 in every 10 women, 7 in every 10 young adults (aged 18-34), and 7 in 10 people living alone experienced poor mental health. Contact: Eve Redgrave (Pinpoint’s Partnership & Participation Co-ordinator) on 01480 499 043. These groups are for adults on the autism or neurodiversity spectrums. 1. Here at AADD-UK we avidly followed the news about mental health issues during Mental Health Awareness Week. We have a Xmas meal in December and hope to expand to include bowling at Aspects Leisure Park or day trips to Weymouth. The sessions are informal and are a chance for parents and carers to chat, find support and ask advice.. 1. Now a lot of these whiners say they sometimes have trouble remembering to take their medication, which on the face of it looks rather the opposite of addiction. Change the subject or give them something else to think about and you know they’ll forget what they were talking about until long after you’ve ushered them out of the surgery. CHADD – Children and Adults with ADD – is the USA’s leading non-profit ADD organization, … Bristol Adult ADHD Support Group: Meets on the 2nd Friday of the month at Bristol Mind, 35 Old Market Street, Bristol BS2 0EZ. Tell them how controversial the whole topic is, how expensive the drugs are, that they aren’t trying hard enough (especially on timekeeping – even if your surgery habitually runs late). ADHD Parents and Carers Support Group (for parents & carers of young people), All Saints Youth Project, All Saints Centre, 2 Vicarage Road, Kings Heath, Birmingham B14 7RA, 1.Brighton Adult Adhd Support Group. I thought I knew what to expect. Email: spacechesham@aol.com; Tel: 07960 066632; website: http://www.spacepage.co.uk/, 1. But the main activity the groups have in common is the support and help they give to each other through the sharing of their experience of living with ADHD. ), stand back and for once look at the big picture. Change the subject or give them something else to think about and you know they’ll forget what they were talking about until long after you’ve ushered them out of the surgery. behaviour, become lost in the system between child and adult mental health services and are also at greater risk of disengagement from services. Adult AD/HD Support Group North East UK: meets 3rd Monday of the month in the seminar room of the Adult ADHD Service, Collingwood Court, St Nicholas Hospital, Gosforth, Newcastle-upon-Tyne NE3 3XT; Contact Bill on 07856 212 564 / 07850901147, or by email  aadhd_ne@yahoo.co.uk, or use the contact forms on their website http://aadhd-ne-uk.weebly.com/contact.html, 1. After this, I carried on reading, paying closer attention to the references and source names, some of whom I also recognised, and by the time I reached the summary (below) on page 5, I’d already concluded that the ‘position statement‘ produced by the Division of Clinical Psychologists was a veiled attempt at undermining psychiatry and diagnoses, i.e. Not all psychologists support the framework, and the same goes for my fellow service users. This is a support group run by the charity Pinpoint (see also Cambridgeshire). ADHD] and any biological pathology or impairment, and nor have any biomarkers been identified” (Johnstone, 2018, 7). 4. 1. The journey through adolescence into adulthood is a time of significant Meets every other Tuesday (term time only) 12-1 pm. If any one of the possible side effects even if unlikely occur (and there’s a huge list on the leaflet with the medication – as with any medicine the leaflet has to list even the really unlikely and unproven ones), take them off. Others have known they had it since childhood. It’s titled  “The future of clinical psychology in the Society” which mentions plans for a another UK association for Clinical Psychologists. ADHD Alliance Ayrshire Support Group: holds monthly meetings for parents /carers who’s child/young person has a diagnosis of ADHD. Prego! The CCG’s decisions and actions means it is violating the principles, values and objectives as set out in their ‘Constitution’, their ‘Equality, Diversity and Inclusion Strategy’, their ‘Ethical Framework for Decision Making’, their ‘Procurement Policy’ as well as the ‘NHS Constitution’, the statutory guidance for ‘Patient and Public Participation in Commissioning Health and Care’ and the ‘Good Governance Standard for Public Service’. Our thanks to ADHD Foundation for adding to our list of Support Groups and ADHD organisations. They will help make the travel arrangements as convenient as possible and will reimburse all of your travel expenses. Email: sarah31@live.co.uk, phone: 01470 542 432, 1. https://www.facebook.com/PerthKinrossAdhdSupport, 1.ADHD Cardiff parent/carer Support. We are a service user organisation and via public promotion on Twitter by the authors and their supporters we were alerted to the open availability of the PTMFramework. Manchester Support Group. 2. And, especially if people do not have access to non-medical, non-blaming explanations, the process can become self-perpetuating as people increasingly request confirmation of self-diagnoses of ‘bipolar disorder’ or ‘ADHD’ and so on.” (2018, p.30), “All of this is reflected in psychiatric diagnosis’ inevitable dependence on social judgements, as we discussed in Chapter 1, and many critics have traced particular diagnoses back to the social norms they challenge: ‘borderline personality disorder’ for women who are too angry; ‘depression’ for women who are exhausted by domestic demands; ‘anorexia nervosa’ as a reaction to the unrealistic role and appearance standards faced by modern women; alcohol misuse and suicide for men whose socialisation does not permit the expression of despair in other ways; ‘ADHD’ for children who are not suited to educational regimentation, and so on . 3. They also have a list of unaffiliated groups, Avoid having to revise or re-learn later on, http://www.spacestockport.org/pages/about.html, https://www.facebook.com/pages/Advocates-for-ADHD-and-Autism-Derby/232324686400?fref=ts, https://idealisticautistic.wordpress.com/2016/04/10/prego/, http://www.hiddengemsasg.co.uk/contact-us.html, Facebook (Adult ADHD Social Group – Devon), https://www.facebook.com/groups/adhdsupportiow/, https://www.facebook.com/adhdsheppeysupportgroup/?pnref=story, http://www.asdashford.com/contact-details-and-office-opening-times.html, http://www.taaglancashire.co.uk/?view=featured, http://www.adhdlancashire.co.uk/index.html, https://www.facebook.com/profile.php?id=100009587374961, http://www.adhdkingston.org.uk/index.html, https://www.facebook.com/m9adhdparentsupportgroup, http://www.meetup.com/Liverpool-adult-adhd-ladders-of-life-meetup-com/. If it has not been amended, please could you discuss this matter with the Trustees as to whether or not the Framework meets the requirements of the BPS Royal Charter. At ADDA, we believe in the power of community. For info contact Carol Cartwright, Community ADHD Nurse on 07917070833. Then, even if the person does realise the patient has ADHD, there is nothing they can do about it. Contact: David Steare; Email: david.steare@ntlworld.com; website: https://www.facebook.com/pages/Advocates-for-ADHD-and-Autism-Derby/232324686400?fref=ts ; also has a closed Facebook page for group members. But to date, the uncorrected version of the PTM Framework ( i.e. . Addressing the Balance: A Scottish charity and social enterprise company limited by guarantee set up to help adults with Attention Deficit Hyperactivity Disorder to self manage their condition and achieve better wellbeing and resilience in their lives. Local ADHD support groups in Scotland. – a web site created and maintained by what one can only imagine is one of the world’s greatest slag heaps of tosspots and ne’er-do-wells – and they’ve actually got hold of the NICE guidelines and the name of somewhere/someone to be referred to (and, if out of area, a copy of the rules pointing out you are duty bound to refer there if there’s nothing suitable locally), Here’s a great example of tactics I have to take my hat off to. More research would help in understanding what their experiences bring in the running of a support group. Sadly, we have some doubts as to whether the Framework has been amended as Lucy Johnstone and her fellow authors are adamantly opposed to psychiatric diagnoses as illustrated in one of the attached tweets as well as in the following quote from the 3rd paragraph on page 314 of the PTM Framework: At the same time as affirming people’s right to describe their difficulties as they wish, we affirm the equally important principle that professionals, researchers, trainers, lecturers, charities, policy-makers and others involved in the mental health field should use language and concepts that have some claim to be descriptively accurate and evidence-based. Instead I decided to leave. CHADD has a nationwide network of Affiliates. But they all have in common that they provide a much needed space for information, help and support for individuals who are or have yet to be diagnosed with ADHD as well as for their relatives and partners. Lucy Johnstone, lead author, on 30 November 2018 told us on Twitter that all discussions of ADHD had been specifically excluded from the PTM Framework (see attached: ‘Tweets September to 30 November 2018’). Contact: Mrs Zoe Danielle Piper; Email: adhdconnections@hotmail.com; Tel: 07713 755 451; website: http://www.adhdconnections.org.uk/ (as of 01/08/2016 not operational), South Glamorgan (Cardiff, Vale of Glamorgan), West Glamorgan (Neath, Port Talbot, Swansea). CHADD has a nationwide network of Affiliates. Or even better, just come up with something new to worry them. info@addbal.co.uk; http://www.addbal.co.uk/home, 1. Intriguingly, there’s strange hints about unity (lack of?) The Expert Working Group highlighted that the problems associated with transition from child to adult services are not disease-specific; they apply to all mental health disorders, for example, epilepsy, autism and social phobia. DCP Position Statement. We also pointed out that our views were not sought before publication. We will be talking with them tomorrow, and they will be investigating the issues around the waiting list. The best place is to start is our About ADHD page. families. Some of us become disheartened, lose faith and sink into helplessness. For more information, please contact Gary Sendall at 07854 325653. In April 2014, one of the CCG’s operational delivery projects for the ADHD service was to ‘achieve funding’ to resource its then current growth. Those who feel they are a Narcissist, we ask you respect the privacy and healing process of our members and invite you to seek support in one of our site's many other groups… Strengths and abilities to help others, to thrive and flourish and so too will the.! Level—Despite receiving warnings from the field of transition of care, all of us become disheartened, faith... 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